20th August 2020 – Parent Network Update

Welcome to HPCI’s latest parent network update. This one is a mixed bag of items on returning to school, Covid research project, Dyspraxia All Party Parliamentary Group and a number of organisations covering a range of special needs and disabilities with resources and information that you may find useful now or in the future.
Our next couple of updates will focus on return to education.  We are also working with HCC and other services to get the right communications out to families with the right information in them in a style that you can easily understand.

Returning to School
Off Schoolhttps://offschool.org.uk/
This is an organisation that has lots of free stuff to inspire and encourage children and young people who are at home.  In particular they have produced an anxiety guide for parents
https://offschool.org.uk/wp-content/uploads/2020/07/ABSR-GUIDE-parents.pdf

An illustrated story for younger children about returning to school
https://www.carmarthenshire.gov.wales/media/1222877/sammy-sloth-story-edited-version-a4.pdf

National Children’s Bureau – Covid 19 impact research
https://www.ncb.org.uk/news-opinion/news-highlights/what-impact-has-covid-19-had-your-family-and-your-children
This research offers the opportunity to contribute to a unique research project with one of the UK’s leading children’s charities. Have your say about the government’s support for children and families during the pandemic and influence future policymaking. They are looking for parents and carers to be part of a project exploring the impact of COVID-19 on children and families. The research involves monthly phone calls with a National Children’s Bureau researcher for 30 minutes. You will share your views on issues such as:
• How have you and your family been affected by nursery and school closures?
• How has the lockdown influenced your families’ wellbeing?
• How have the changes to children’s services affected your family?
Receive a £10 shopping voucher for each interview.
They are very keen to hear from families who might have been more negatively affected by the pandemic particularly if you are from a Black or Minority Ethnic background, identify as LGBT+, have a disability or Special Education Need/s, or your children are eligible for free school meals.

All Age Parliamentary Group (APPG) for Dyspraxia/DCD
The APPG exists to raise awareness of Dyspraxia/DCD and other neurodivergent conditions, and to share ideas and act as a link between Parliament and individuals, organisations and charities involved with this issue.
The APPG on Dyspraxia has launched an inquiry into the experience of dyspraxic people in the economy and wider society.
Parliamentarians on the group are seeking to collect evidence from a wide range of people, with a particular focus on:

  • The experience of dyspraxic people in the economy, and ways in which more supportive policies (such as clearer pathways to identification) could benefit the economy as a whole
  • The role of public services, including schools, further and higher education, health and local authority services, and programmes such as Access to Work
  • The experience of dyspraxic people during the coronavirus outbreak (including in schools)

The APPG’s inquiry will look at what steps need to be taken to ensure that dyspraxic people have a more supportive and inclusive experience, and make recommendations to Ministers. This evidence collection serves as a scoping exercise and evidence will be collected into key themes, examining the breadth of issues surrounding dyspraxia.
The inquiry would welcome evidence in particular from:

  • People with lived experience of dyspraxia, including dyspraxic adults, dyspraxic young people, and their families

The APPG would welcome submissions that take a range of approaches, including personal accounts, case studies of successful approaches, and research and statistics on the issue.
While there is no word limit on submissions, it is anticipated that most submissions will be no longer than four pages. Whilst the names of organisations that submit evidence will be acknowledged in any report materials, no details that could be used to identify individuals will be published without explicit prior consent.
The deadline for evidence is 17:00 on Friday 28 August 2020. To submit evidence, please send it to: info@wholeschoolsend.com
If you wish to submit evidence in a different format for accessibility reasons, please contact annabelb@nasen.org.uk and all reasonable efforts will be made to accommodate your request.

Various organisations

Cerebra a national charity for children with brain conditions and their families
https://cerebra.org.uk/get-advice-support/parent-guides/
Anxiety, Sensory Processing, Pain, Managing Challenging Behaviour, Benefits, Working parents & carers, Self-injury, Sleep, Toilet training, Transition,

Afasic – a national charity covering speech, language and communication difficulties
Handy hints and guides for early recognition of a speech and language or communication problem and getting help
https://www.afasic.org.uk/resources/free-downloads/recognising-a-problem-and-getting-help/
They also have lots of other free resources to download, videos and apps
https://www.afasic.org.uk/resources/

Naplic – national association of professionals concerned with language impairment in children This charity founded 1986 has lots of resources for parents.
https://padlet.com/naplicchair/e83ts3jjjrw1

British Dyslexia Association
A guide for studying from home
https://cdn.bdadyslexia.org.uk/documents/Dyslexia-and-Studying-from-Home.pdf?mtime=20200720164936&focal=none

bild – Covid 19 – Positive Behaviour support line for parents
Details are in the flyer below – NOTE that the link to book an appointment is not ‘live’ in the flyer due to being converted from a pdf but  here it is https://www.eventbrite.co.uk/e/pbs-helpline-by-bild-registration-110952231110